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Rimpianto per l’azione vs. l’inazione

Assistenza medica al morire vs. cure palliative per una malattia terminale

Se agisci

Suicidio medicalmente assistito

5,0%

Se non agisci

Cure di conforto / hospice (morte naturale)

25%

Percentuale di chi poi rimpiange ciascuna scelta. Le barre e il registro completo dei dati compaiono sotto.


Salute

Ultima revisione 2026-05-04

Qualità delle prove 4.0/5

Punteggio di revisione su otto dimensioni rispetto alla griglia di qualità . Ogni dimensione valutata da 1 a 5.

D1 Verifica delle fonti
4/5
D2 Autorità e indipendenza delle fonti
4/5
D3 Precisione del tasso di rimpianto
2/5
D4 Comparabilità delle fonti
3/5
D5 Schema di Gilovich
5/5
D6 Qualità della prosa
5/5
D7 Completezza degli avvertimenti
5/5
D8 Qualità del campione
4/5
Media 4.0/5
A flat vector illustration of two paths diverging in a quiet garden, one lit softly, one in shade.
Dati proxy — non esiste alcun sondaggio diretto sul rimpianto per questa decisione. I tassi sono derivati da punteggi di soddisfazione e dati sulle barriere di accesso piuttosto che da domande che chiedevano direttamente del rimpianto. Vedi avvertenze di seguito.

Rimpianto per azione

Suicidio medicalmente assistito

5,0%

~5% dei parenti in lutto mostra un lutto complicato dopo una morte assistita (e un lutto meno traumatico rispetto a dopo una morte naturale)

Famiglie in lutto dei pazienti MAID in Belgio, Paesi Bassi, Canada e Oregon (dati multi-giurisdizionali)

retrospettivo, 1-12 mesi post-decesso

Rimpianto per inazione

Cure di conforto / hospice (morte naturale)

25%

~25% delle famiglie in lutto riferisce bisogni non soddisfatti o rimpianto riguardo alla qualità delle cure di fine vita

Famiglie in lutto di pazienti terminali morti senza MAID in contesti di hospice/ospedale statunitensi ed europei

retrospettivo, entro 6-12 mesi post-decesso

% rimpiange questa scelta

inaction dominates — L'inazione domina — la maggior parte si pente di non aver agito.

Decisioni correlate

Decisioni semanticamente simili — stesso terreno, compromessi diversi.

Salute

Chemio aggressiva vs. cure palliative precoci

% rimpiange questa scelta

L'azione prevale

Rimpianto per l'azione 1.3× maggiore

Salute

Tempi della dichiarazione anticipata

% rimpiange questa scelta

L'inazione prevale

Rimpianto per l'inazione 10.0× maggiore

familyDiretta

Autorizza donazione organi familiare vs. rifiuta

% rimpiange questa scelta

L'inazione prevale

Rimpianto per l'inazione 6.8× maggiore

family

Casa di cura vs. assistenza domiciliare

% rimpiange questa scelta

L'azione prevale

Rimpianto per l'azione 2.3× maggiore

Salute

Solo alternativa vs. convenzionale

% rimpiange questa scelta

L'azione prevale

Rimpianto per l'azione 2.6× maggiore

Salute

Longevità vs accettare invecchiamento

% rimpiange questa scelta

L'inazione prevale

Rimpianto per l'inazione 1.5× maggiore

Salute

Intervento per la riabilitazione vs. attesa

% rimpiange questa scelta

L'inazione prevale

Rimpianto per l'inazione 1.8× maggiore

Salute

Dialisi vs. cure conservative

% rimpiange questa scelta

L'azione prevale

Rimpianto per l'azione 3.8× maggiore

In the jurisdictions where it is legal, medical aid in dying is chosen by a small but growing minority of terminally ill patients — 5.4% of deaths in the Netherlands in 2023, 4.1% in Canada in 2022, and a small fraction of a percent of all deaths in Oregon (38.6 per 10,000 total deaths over the law’s first 18 years), though cancer patients make up the large majority of Oregon’s MAID users — 77% of the 991 patients who used the Death With Dignity Act between 1998 and 2015. These provision counts come from government monitoring reports, which do not survey bereaved families. The family-distress evidence comes instead from bereavement studies: Swarte and colleagues’ BMJ 2003 cross-sectional comparison (189 relatives bereaved by euthanasia vs 316 by natural death of gynaecological-cancer patients) found less traumatic grief and fewer post-traumatic stress reactions in the euthanasia group, and a Swiss study of relatives who witnessed assisted suicide found roughly 5% met criteria for complicated grief (and 13% for full PTSD). One figure stands out from the Oregon Death With Dignity Act data: roughly 30–40% of patients who receive the legally required prescription for lethal medication never use it. For many, simply having the option is sufficient.

The comparison group — families of patients who died without MAID, in hospice or hospital settings — shows substantial unmet need. Teno and colleagues’ landmark 2004 JAMA survey of bereaved families of decedents (n=1,578) found that about a quarter said the patient did not get adequate help with pain (24.2%) and a similar share had concerns with physician communication (23.9%), while half reported insufficient emotional support (50.2%); nursing-home patients were least likely to be “always” treated with respect (68.2%, versus 96.2% in home hospice). The Detering 2010 BMJ RCT found that among families of patients who died, control-group relatives (no advance care planning) had clinically significant depression in 30% of cases, anxiety in 19%, and high PTSD risk in 15% — whereas the advance-care-planning group registered none of these. These figures reflect real, fixable gaps in comfort care rather than a universal defect of natural dying; well-resourced hospice deaths scored far better than institutional ones.

The methodological problem that makes this entry uniquely uncertain is the impossibility of asking MAID patients whether they regret the decision. All regret measurement is family-proxied, and all cross-group comparison conflates eligibility, access, and choice. MAID patients are a selected group: motivated enough to navigate legal and clinical requirements, often dying of cancer with predictable trajectories, and in jurisdictions with functioning access infrastructure. MAID remains illegal in the great majority of the world’s roughly 195 countries; those populations have no choice, and their inclusion would likely shift every figure. What the available data supports most clearly is this: in jurisdictions where both paths are genuinely available and supported, the major asymmetry is not in the dying itself but in the quality of the dying — and unmet needs in natural-death settings remain common enough to constitute a public health gap, not a rare failure.

Fonti: azione

Registro delle fonti

Ogni numero qui sotto è ciò che ciascuna fonte ha riportato, con la citazione testuale su cui ci siamo basati e come siamo arrivati alla nostra cifra. Clicca su qualsiasi link per verificare direttamente.

2/4 fonti verificate in modo indipendente e alla lettera rispetto alla fonte citata

  1. [1] Health Canada — Fourth Annual Report on Medical Assistance in Dying in Canada 2022
    Fourth Annual Report on Medical Assistance in Dying in Canada 2022
    Statistica
    13,241 MAID provisions in Canada in 2022, representing 4.1% of all deaths in Canada
    Estratto
    “"In 2022, there were 13,241 MAID provisions in Canada, accounting for 4.1% of all deaths in Canada. Since the introduction of federal MAID legislation in 2016, the number of reported MAID deaths has increased steadily each year." ”
    Dati originali da
    2023-10-24
    Consultato
    2026-05-04
    Calcolo
    Health Canada Fourth Annual Report on MAID 2022 establishes only the provision count and its share of all deaths (13,241 = 4.1%; corroborated by Statistics Canada, The Daily 2023-11-29). This federal monitoring report does NOT survey bereaved families and contains no family-satisfaction or family-regret figure — it is cited here for the denominator (how common MAID is), not for the action-side regret rate. The regret rate is grounded in the Swarte (BMJ 2003) and Wagner (2012) bereavement studies below.
  2. [2] Regional Euthanasia Review Committees (Netherlands) — Regional Euthanasia Review Committees Annual Report 2023
    Regional Euthanasia Review Committees Annual Report 2023
    Statistica
    9,068 euthanasia/assisted-suicide notifications in the Netherlands in 2023 (5.4% of all deaths); 5 cases found not to meet the due care criteria (>99.9% compliant)
    Estratto
    “"In 2023 the RTEs received 9,068 notifications of euthanasia. These 9,068 deaths represent 5.4% of the total number of deaths in the Netherlands. In five of the notified cases the committees found that the physician had not acted in accordance with all of the due care criteria." ”
    Dati originali da
    2024-04-04
    Consultato
    2026-05-04
    Calcolo
    Dutch RTE Annual Report 2023 (direct PDF: euthanasiecommissie.nl/.../jaarverslag-2023/ Annual+report+2023.pdf; figures corroborated by FSSPX News 2024). 9,068 notifications = 5.4% of all Dutch deaths; only 5 of 9,068 cases (0.06%) were judged non-compliant, i.e. >99.9% met every due care criterion. This report counts and reviews notifications; it does NOT contain a bereaved-family satisfaction or regret survey, so it is cited for the provision count and compliance rate only — not for the action-side regret figure.
  3. [3] Ontario HIV Treatment Network (rapid response) citing Swarte et al. BMJ 2003 and Wagner et al. 2012 — Effects of euthanasia on the bereaved family and friends (Swarte et al., BMJ 2003) and Death by request in Switzerland (Wagner et al., 2012), as summarised in the OHTN rapid response on the impact of MAID on family and friends Verificato
    Effects of euthanasia on the bereaved family and friends (Swarte et al., BMJ 2003) and Death by request in Switzerland (Wagner et al., 2012), as summarised in the OHTN rapid response on the impact of MAID on family and friends
    Statistica
    Family/friends bereaved by euthanasia had less traumatic grief and fewer post-traumatic stress reactions than those bereaved by natural death (Swarte, n=189 vs 316); among relatives who witnessed assisted suicide, 5% met criteria for complicated grief and 13% for full PTSD (Wagner)
    Estratto
    “"[On Swarte et al. 2003, Netherlands] family and friends of patients who requested medical assistance in dying had less traumatic grief symptoms, fewer current feelings of grief, and fewer post-traumatic stress symptoms compared to the family and friends of women who died naturally. [On Wagner et al. 2012, Switzerland] 13% met the criteria for full PTSD, 7% met the criteria for subthreshold PTSD, and 5% met the criteria for complicated grief. The prevalence of depression was 16% and the prevalence of anxiety was 6%." ”
    Dati originali da
    2003-07-26
    Consultato
    2026-06-30
    Verifica
    Estratto recuperato in modo indipendente e confermato parola per parola rispetto alla fonte citata durante il nostro audit di attendibilità.
    Calcolo
    The ~5% action-side figure is grounded here, not in the provision-counting government reports above. The direct comparison study (Swarte, BMJ 2003; n=189 euthanasia vs n=316 natural death of gynaecological-cancer patients) found LESS traumatic grief and fewer PTSD reactions among the euthanasia-bereaved — i.e. family distress after MAID is at or below the natural-death baseline. The Swiss witness study (Wagner 2012) gives a concrete absolute: ~5% complicated grief among relatives who were present at an assisted death. This is a family-distress proxy, not a direct "do you regret the decision?" survey — see proxy_only and caveats. 0.05 is used as a conservative distress/complicated-grief rate consistent with both studies.
  4. [4] Drug and Alcohol Dependence / peer-reviewed characterization of Oregon Health Authority DWDA data, 1998-2015 — Characterizing 18 Years of the Death With Dignity Act in Oregon Verificato
    Characterizing 18 Years of the Death With Dignity Act in Oregon
    Statistica
    Of 991 Oregon patients who used the Death With Dignity Act 1998-2015, 762 (77.1%) had cancer as the underlying terminal illness; DWDA deaths represent 38.6 per 10,000 total Oregon deaths over the period
    Estratto
    “"Cancer was the most common underlying terminal illness, with 762 (77.1%) patients." "DWDA deaths make up only a small fraction of overall Oregon resident mortality, with a rate of 38.6 per 10,000 total deaths." ”
    Dati originali da
    2018-01-01
    Consultato
    2026-07-03
    Verifica
    Estratto recuperato in modo indipendente e confermato parola per parola rispetto alla fonte citata durante il nostro audit di attendibilità.
    Calcolo
    Used to correct and ground the Oregon reference in the body text (originally an unsourced "3-4% of cancer deaths" claim that does not match any published Oregon Health Authority or peer-reviewed figure; Oregon Health Authority annual reports and this characterization paper report DWDA usage as a rate per 10,000 deaths, not a percentage of cancer deaths specifically, and the overall DWDA share of Oregon deaths is well under 1%). Replaced with the two verified figures: cancer as underlying illness in 77.1% of DWDA patients, and DWDA deaths at 38.6 per 10,000 of all Oregon deaths, 1998-2015. Not used to compute the action-side regret rate — provided for provision-count context only, same role as the Health Canada and Dutch RTE sources above.
    Indipendenza
    Peer-reviewed academic characterization of Oregon Health Authority's own published DWDA surveillance data; independent of the Swarte and Wagner bereavement studies used for the regret rate.

Fonti: inazione

Registro delle fonti

Ogni numero qui sotto è ciò che ciascuna fonte ha riportato, con la citazione testuale su cui ci siamo basati e come siamo arrivati alla nostra cifra. Clicca su qualsiasi link per verificare direttamente.

1/2 fonti verificate in modo indipendente e alla lettera rispetto alla fonte citata

  1. [1] JAMA (Teno et al., 2004; PMID 14709580) — Family Perspectives on End-of-Life Care at the Last Place of Care Verificato
    Family Perspectives on End-of-Life Care at the Last Place of Care

    See all 2 Likelier entries citing this source →

    Statistica
    Bereaved families of 1,578 decedents: ~25% said pain was not adequately treated and ~24% had concerns with physician communication; 50.2% said the patient did not get enough emotional support; nursing-home patients least likely to be 'always' treated with respect (68.2% vs 96.2% home hospice)
    Estratto
    “"Nearly one fourth of all respondents reported that the patient did not receive any or enough help with pain (24.2%) or dyspnea (22.4%). About 1 in 4 families reported concerns with physician communication regarding medical decision making (23.9%). Half of family members reported that the patient did not receive enough emotional support (50.2%). Nursing home residents were less likely than those cared for in a hospital or by home hospice services to always have been treated with respect at the end of life (68.2% vs 79.6% and 96.2%, respectively)." ”
    Dati originali da
    2004-01-07
    Consultato
    2026-06-30
    Verifica
    Estratto recuperato in modo indipendente e confermato parola per parola rispetto alla fonte citata durante il nostro audit di attendibilità.
    Calcolo
    Teno et al. 2004 JAMA — mortality follow-back survey of bereaved families of decedents (n=1,578; PMID 14709580). Correct article is fullarticle/197944 (the previously cited fullarticle/198197 was an unrelated software review). The inaction-side ~25% proxy is the rate of clearly unmet end-of-life needs — ~24% inadequate pain treatment and ~24% physician-communication concerns; family rating of "always treated with respect" was as low as 68.2% in nursing homes (i.e. ~32% short of always). This is used as an unmet-needs / dissatisfaction proxy because no survey asks natural-death families "do you wish MAID had been chosen." Hospice deaths scored far better (96.2% respect), which is why the proxy is a cross-setting figure, not a universal property of natural dying.
  2. [2] BMJ — The impact of advance care planning on end of life care in elderly patients: randomised controlled trial
    The impact of advance care planning on end of life care in elderly patients: randomised controlled trial

    See all 2 Likelier entries citing this source →

    Statistica
    Among families of patients who died (29 intervention vs 27 control), control-group relatives had clinically significant depression 30% (8/27), anxiety 19% (5/27) and high PTSD risk 15% (4/27); the advance-care-planning group was 0% on all three
    Estratto
    “[Paraphrase from Table 3 — BMJ full text paywalled; figures verified via PMC2844949] Among family members of the patients who died, in the control group (no advance care planning) clinically significant depression occurred in 30% (8/27), anxiety in 19% (5/27), and post-traumatic stress in 15% (4/27); in the intervention (advance care planning) group the corresponding rate was 0% on each measure ("scores of this level occurred only in the family members of control group patients who had died"). Family members of intervention patients were more satisfied with the quality of dying. ”
    Dati originali da
    2010-03-23
    Consultato
    2026-06-30
    Calcolo
    Detering et al. BMJ 2010 RCT of 309 elderly inpatients (PMID 20332506; family-outcome subgroup: 56 deceased, 29 intervention / 27 control). Verbatim from Table 3: control-group bereaved relatives showed depression 30% (8/27), anxiety 19% (5/27), high PTSD risk 15% (4/27); the ACP group was 0% on all three. (The earlier excerpt's "15% in the ACP group" was wrong — 15% is the control-group PTSD figure; the ACP group was 0%.) These are family distress measures, not MAID-specific regret; cited as a corroborating signal that ~1 in 4–1 in 3 bereaved relatives suffer significant distress when end-of-life care/planning is not optimised, consistent with the inaction-side ~25% unmet-needs proxy.

Avvertenze

Questa scheda è tra le più vincolate dal punto di vista metodologico nel progetto. La sfida centrale è la misurazione asimmetrica: i pazienti MAID sono morti e non possono riferire il proprio rimpianto; il loro proxy familiare è il miglior segnale disponibile. I pazienti e le famiglie della morte naturale allo stesso modo non affrontano alcun controfattuale netto ("avresti scelto la MAID se fosse stata disponibile e accettabile?"). I tassi di rimpianto usati qui sono misure di disagio riferite dalla famiglia, non sondaggi diretti sul rimpianto decisionale, e vanno intesi come proxy. La MAID è legale in circa 30 giurisdizioni nel mondo (tra cui Canada, Paesi Bassi, Belgio, Australia e diversi Stati USA); i criteri di ammissibilità variano sostanzialmente, da solo-malattia-terminale (Oregon) a sofferenza non terminale più ampia (Paesi Bassi, Belgio, Canada Track 2). Il 30–40% dei titolari di prescrizione MAID che ricevono la prescrizione ma non la assumono mai — dati dell'Oregon dal 1997 al 2023 — suggerisce che l'accesso stesso riduca il disagio indipendentemente dall'uso. La preoccupazione per la causalità inversa è reale: i pazienti MAID possono autoselezionarsi nel processo in parte perché le loro morti stavano già andando bene; i pazienti in hospice che morivano con bisogni non soddisfatti non erano ammissibili alla MAID o non l'hanno scelta per altri motivi.

Dati grezzi: /api/decisions.json

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